SUNFLOWER SYNDROME ADVOCACY GROUP
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- Sunflower Syndrome is a rare form of photosensitive epilepsy that is accompanied by hand waiving in front of the face.
- Individuals with Sunflower Syndrome may compulsively turn their head to the light, allowing seizure control to be difficult.
OUR MISSION
Create community to those who have been affected by Sunflower Syndrome while providing support for research, families, and patients.
. This organization is entirely patient led with the intention of providing support for families from the perspective of other families.